Title

Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study.

Document Type

Journal Article

Publication Date

1-29-2019

Journal

Orphanet Journal of Rare Diseases

Volume

14

Issue

1

DOI

10.1186/s13023-019-1004-x.

Peer Reviewed

1

Open Access

1

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