Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study.

Authors

Laura L Tosi, George Washington University
Marianne K Floor
Christina M Dollar, George Washington University
Austin P Gillies
Tracy S Hart
David D Cuthbertson
V Reid Sutton
Jeffrey P Krischer

Document Type

Journal Article

Publication Date

1-29-2019

Journal

Orphanet Journal of Rare Diseases

Volume

14

Issue

1

DOI

10.1186/s13023-019-1004-x.

APA Citation

Tosi, L., Floor, M., Dollar, C., Gillies, A., Hart, T., Cuthbertson, D., Sutton, V., & Krischer, J. (2019). Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study.. Orphanet Journal of Rare Diseases, 14 (1). http://dx.doi.org/10.1186/s13023-019-1004-x.

Peer Reviewed

1

Open Access

1