Linking Participatory Action Research on Health Systems to Justice in Global Health: A Case Study of the Maternal and Neonatal Implementation for Equitable Health Systems Project in Rural Uganda

Document Type

Journal Article

Publication Date

2-1-2018

Journal

Journal of Empirical Research on Human Research Ethics

Volume

13

Issue

1

DOI

10.1177/1556264617741022

Keywords

equity; global health; health systems research; justice; low- and middle-income countries; participatory action research; research ethics

Abstract

© 2017, © The Author(s) 2017. An ethical framework called “research for health justice” provides initial guidance on how to link health systems research in low- and middle-income countries to health equity. To further develop the largely conceptual framework, we tested its guidance against the experience of the Maternal and Neonatal Implementation for Equitable Health Systems (Manifest) project, which was performed in rural Uganda by researchers from Makerere University. We conducted 21 in-depth interviews with investigators and research implementers, directly observed study sites, and reviewed study-related documents. Our analysis identifies where alignment exists between the framework’s guidance and the Manifest project, providing initial lessons on how that was achieved. It also identifies where nonalignment occurred and gaps in the framework’s guidance. Suggestions are then made for revising and expanding “research for health justice”.

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