Parents of Children With Cancer: Factors Influencing Their Treatment Decision Making Roles

Authors

Kimberly A. Pyke-Grimm, Rady Children's Hospital
Janet L. Stewart, Rady Children's Hospital
Katherine P. Kelly, Rady Children's Hospital
Lesley F. Degner, Rady Children's Hospital

Document Type

Journal Article

Publication Date

10-1-2006

Journal

Journal of Pediatric Nursing

Volume

21

Issue

5

DOI

10.1016/j.pedn.2006.02.005

Abstract

This study examined the factors that parents identified as influencing their role in treatment decision making (TDM) for their child with cancer. Content analysis of qualitative data from semistructured interviews with 36 parents as part of a mixed-methods study revealed numerous themes related to parents' TDM roles. Factors that were frequently identified included: relationship with the physician, nature of communication, trust in the physician, parents' and physician's knowledge and experience, and importance of parental role. Parents acknowledged a strong sense of responsibility and feeling of "ownership" of their child. Parents initially lacked knowledge and experience, but acquiring these over time contributed to a more active participation in TDM. © 2006 Elsevier Inc. All rights reserved.

APA Citation

Pyke-Grimm, K., Stewart, J., Kelly, K., & Degner, L. (2006). Parents of Children With Cancer: Factors Influencing Their Treatment Decision Making Roles. Journal of Pediatric Nursing, 21 (5). http://dx.doi.org/10.1016/j.pedn.2006.02.005