Assessing Well-Being, Caregiver Burden and Support in Sibling Caregivers of Individuals With Intellectual and Developmental Disabilities

Document Type

Journal Article

Publication Date

11-1-2025

Journal

Journal of applied research in intellectual disabilities : JARID

Volume

38

Issue

6

DOI

10.1111/jar.70154

Keywords

adult siblings; burden; caregiver; intellectual developmental disability; socio‐economic status; well‐being

Abstract

BACKGROUND: This study aimed to understand the well-being, caregiver burden and support of sibling caregivers of individuals with intellectual and developmental disabilities. METHOD: This survey study gathered insights from adult sibling caregivers about their well-being, caregiver burden and sources of support. Demographic information was collected. Self-reported well-being measures were assessed. A descriptive analysis of the quantitative data was conducted. Qualitative data was analysed thematically. Differences and associations in scores related to income level were explored. RESULTS: Sibling caregivers reported taking care of their well-being but report high caregiver burden. As caregiver burden increases, well-being decreases (p = 0.001). Siblings with higher income report a significantly higher sense of well-being (p = 0.033). Qualitative responses highlight the need for sibling caregiver support. CONCLUSION: The findings indicate relatively high caregiver burden and the importance of support for sibling caregivers. Future research is warranted focused on strategies to lessen caregiver burden and increase sibling well-being.

Department

Health, Human Function, and Rehabilitation Sciences

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