Towards trustworthiness of precision medicine research for people with disabilities

Authors

Alejandra Aguirre, Department of Medical Humanities and Ethics, Columbia University, New York, NY, USA.
Sandra Soo-Jin Lee, Department of Medical Humanities and Ethics, Columbia University, New York, NY, USA.
Shawneequa Callier, Department of Clinical Research and Leadership, George Washington University School of Medicine and Health Sciences, Washington, DC, USA.
Paul Spicer, Department of Anthropology, University of Oklahoma, Norman, OK, USA.
Maya Sabatello, Department of Medical Humanities and Ethics, Columbia University, New York, NY, USA. ms4075@cumc.columbia.edu.

Document Type

Journal Article

Publication Date

6-1-2025

Journal

Nature genetics

Volume

57

Issue

6

DOI

10.1038/s41588-025-02195-1

Abstract

People with disabilities are underrepresented in general (i.e., non-disability specific) precision medicine research (PMR), limiting access to its benefits. This commentary examines key reasons for this limited participation, focusing on the role of (dis)trust. We identify areas for further inquiry to guide researchers and enhance the trustworthiness of PMR for people with disabilities.

APA Citation

Aguirre, Alejandra; Lee, Sandra Soo-Jin; Callier, Shawneequa; Spicer, Paul; and Sabatello, Maya, "Towards trustworthiness of precision medicine research for people with disabilities" (2025). GW Authored Works. Paper 7490.
https://hsrc.himmelfarb.gwu.edu/gwhpubs/7490

Department

Clinical Research and Leadership