Using concept mapping to identify recruitment and engagement strategies for inclusion of LGBTQIA+ populations in Alzheimer's disease and related dementia research

Authors

Brittany Klenczar-Castro, Department of Social and Behavioral Health School of Public Health University of Nevada Las Vegas Nevada USA.
Krystal R. Kittle, Department of Health Promotion and Policy School of Public Health & Health Sciences University of Massachusetts Amherst Amherst Massachusetts USA.
Joel G. Anderson, College of Nursing University of Tennessee Knoxville Tennessee USA.
Whitney Wharton, Nell Hodgson Woodruff School of Nursing Emory University Atlanta Georgia USA.
Andrea Gilmore-Bykovskyi, Berbee Walsh Department of Emergency Medicine School of Medicine and Public Health University of Wisconsin-Madison Madison Wisconsin USA.
N Maritza Dowling, School of Nursing The George Washington University Washington District of Columbia USA.
Jaime Perales-Puchalt, Department of Neurology University of Kansas Alzheimer's Disease Research Center Kansas City Kansas USA.
Jason D. Flatt, Department of Social and Behavioral Health School of Public Health University of Nevada Las Vegas Nevada USA.

Document Type

Journal Article

Publication Date

1-1-2024

Journal

Alzheimer's & dementia (New York, N. Y.)

Volume

10

Issue

2

DOI

10.1002/trc2.12477

Keywords

Alzheimer's disease; LGBTQIA+; concept mapping; recruitment science

Abstract

INTRODUCTION: Past Alzheimer's disease and related dementias (ADRD) research has not considered ways to ensure the representation of diverse sexual and gender minorities. This study used concept mapping (CM) to identify strategies for engaging and recruiting LGBTQIA+ older adults living with memory loss and their caregivers into ADRD research. METHODS: CM, involving brainstorming, thematic analysis, and rating of strategies, was conducted with 46 members from one national and three local community advisory boards. Data was analyzed using The Concept Systems Global MAX™ web platform. RESULTS: One hundred twenty-two solutions were identified from June through December 2022, and represented five key themes: aging focused, LGBTQIA+ specific, memory loss and caregiving support focused, physical advertisements, and other media. Promising strategies included partnering with LGBTQIA+ health centers, attending social groups for older adults, and increasing community representation in marketing. DISCUSSION: Tailored strategies, building trust, and community involvement are essential for engaging LGBTQIA+ individuals living with memory loss or ADRD and their caregivers in ADRD-focused research. HIGHLIGHTS: Innovative ways to ensure the inclusion of LGBTQIA+ older adults in Alzheimer's disease and related dementias (ADRD) research can be bolstered through collaboration with key community stakeholders.Promising strategies for recruitment and engagement include partnering with LGBTQIA+ centers, attending social groups for older adults, and ensuring diverse representation in marketing.Tailored recruitment and engagement strategies are crucial for building trust with LGBTQIA+ populations to increase participation in ADRD research.

APA Citation

Klenczar-Castro, Brittany; Kittle, Krystal R.; Anderson, Joel G.; Wharton, Whitney; Gilmore-Bykovskyi, Andrea; Dowling, N Maritza; Perales-Puchalt, Jaime; and Flatt, Jason D., "Using concept mapping to identify recruitment and engagement strategies for inclusion of LGBTQIA+ populations in Alzheimer's disease and related dementia research" (2024). GW Authored Works. Paper 5064.
https://hsrc.himmelfarb.gwu.edu/gwhpubs/5064

Department

Nursing Faculty Publications