How we approach sharing child-caregiver PRO disagreement
Pediatric blood & cancer
PRO; family support; pediatric oncology
Researchers use patient-reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child-caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting is a crucial element of supporting families and can improve family harmony throughout the child's illness journey. This paper offers strategies and language for communicating with families about PRO disagreement.
Porter, Amy S.; Hinds, Pamela S.; Wiener, Lori; Thompson, Amanda L.; and Weaver, Meaghann S., "How we approach sharing child-caregiver PRO disagreement" (2024). GW Authored Works. Paper 3712.