How we approach sharing child-caregiver PRO disagreement

Authors

Amy S. Porter, Division of Supportive and Palliative Care, Mass General for Children, Boston, Massachusetts, USA.
Pamela S. Hinds, Department of Nursing Science, Professional Practice and Quality, Children's National Hospital, Washington, District of Columbia, USA.
Lori Wiener, Pediatric Oncology Branch, Center for Cancer Research, National Cancer Institute (NCI), Bethesda, Maryland, USA.
Amanda L. Thompson, Life with Cancer, Inova Schar Cancer Institute, Fairfax, Virginia, USA.
Meaghann S. Weaver, Department of Pediatrics, University of Nebraska, Omaha, Nebraska, USA.

Document Type

Journal Article

Publication Date

2-1-2024

Journal

Pediatric blood & cancer

Volume

71

Issue

2

DOI

10.1002/pbc.30783

Keywords

PRO; family support; pediatric oncology

Abstract

Researchers use patient-reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child-caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting is a crucial element of supporting families and can improve family harmony throughout the child's illness journey. This paper offers strategies and language for communicating with families about PRO disagreement.

APA Citation

Porter, Amy S.; Hinds, Pamela S.; Wiener, Lori; Thompson, Amanda L.; and Weaver, Meaghann S., "How we approach sharing child-caregiver PRO disagreement" (2024). GW Authored Works. Paper 3712.
https://hsrc.himmelfarb.gwu.edu/gwhpubs/3712

Department

Pediatrics