Translating research into practice-implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat

Cagri Yildirim-Toruner, Baylor College of Medicine, 1102 Bates Avenue Suite 330, Houston, TX, 77030, USA. cagri.yildirimtoruner@bcm.edu.
Rajdeep Pooni, Stanford University School of Medicine, Lucile Packard Children's Hospital, Stanford Children's Health, Palo Alto, CA, USA.
Y Ingrid Goh, The Hospital for Sick Children, Toronto, Ontario, Canada.
Emily Becker-Haimes, University of Pennsylvania, Perelman School of Medicine, Philadelphia, PA, USA.
James W. Dearing, Michigan State University, Michigan, MI, USA.
Maria E. Fernandez, University of Texas Health Science Center at Houston, Houston, TX, USA.
Esi M. Morgan, University of Washington, Seattle, WA, USA.
Gareth Parry, Boston Children's Hospital, (formerly at Institute for Healthcare Improvement (IHI)), Boston, MA, USA.
Jon M. Burnham, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Stacy P. Ardoin, Nationwide Children's Hospital, Columbus, OH, USA.
Fatima Barbar-Smiley, Nationwide Children's Hospital, Columbus, OH, USA.
Joyce C. Chang, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Peter Chiraseveenuprapund, University of California, San Diego, USA.
Vincent Del Gaizo, CARRA, Partnerships and Patient Engagement, Milwaukee, WI, USA.
Guy Eakin, Arthritis Foundation, Atlanta, GA, USA.
Lisa C. Johnson, The Dartmouth Institute for health policy and Clinical Practice, Lebanon, NH, USA.
Yukiko Kimura, The Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, Hackensack, NJ, USA.
Andrea M. Knight, The Hospital for Sick Children, Toronto, Ontario, Canada.
Melanie Kohlheim, CARRA, Partnerships and Patient Engagement, Milwaukee, WI, USA.
Erica F. Lawson, University of California, San Francisco, San Francisco, CA, USA.
Mindy S. Lo, Boston Children's Hospital, (formerly at Institute for Healthcare Improvement (IHI)), Boston, MA, USA.
Nancy Pan, Hospital for Special Surgery, Weill Medical College of Cornell University, New York, NY, USA.
Andrea Ring, Arthritis Foundation, Atlanta, GA, USA.
Tova Ronis, Children's National Hospital, George Washington University, Washington, DC, USA.
Rebecca E. Sadun, Duke University, Durham, NC, USA.
Emily A. Smitherman, University of Alabama/ Children's of Alabama, Birmingham, AL, USA.
Alysha J. Taxter, Wake Forest University, Winston-Salem, NC, USA.
Janalee Taylor, Cincinnati Children's Hospital, OH, Cincinatti, USA.
Richard K. Vehe, University of Minnesota, Minnesota, MN, USA.
Sheetal S. Vora, University of Minnesota, Minnesota, MN, USA.
Jennifer E. Weiss, The Joseph M. Sanzari Children's Hospital, Hackensack Meridian School of Medicine, Hackensack, NJ, USA.
Emily von Scheven, University of California, San Francisco, San Francisco, CA, USA.

Document Type

Conference Proceeding

Publication Date

2-7-2022

Journal

Pediatric rheumatology online journal

Volume

20

Issue

1

DOI

10.1186/s12969-022-00665-y

Keywords

Dissemination; Framework; Implementation; Implementation sciences; Knowledge translation; Pediatric rheumatology; Strategy

Abstract

The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. Implementation science methodologies have been shown to reduce the research- to- practice gap in other clinical settings may have similar utility in pediatric rheumatology. This paper describes the key discussion points from the inaugural Childhood Arthritis and Rheumatology Research Alliance Implementation Science retreat held in February 2020. The aim of this report is to synthesize those findings into an Implementation Science Roadmap for pediatric rheumatology research. This roadmap is based on three foundational principles: fostering curiosity and ensuring discovery, integration of research and quality improvement, and patient-centeredness. We include six key steps anchored in the principles of implementation science. Applying this roadmap will enable researchers to evaluate the full range of research activities, from the initial clinical design and evidence acquisition to the application of those findings in pediatric rheumatology clinics and direct patient care.

Department

Pediatrics

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