Cell-free DNA screening for prenatal detection of 22q11.2 deletion syndrome

Authors

Pe'er Dar, Department of Obstetrics and Gynecology and Women's Health, Montefiore Medical Center, Albert Einstein College of Medicine, New York, NY. Electronic address: peerdar@gmail.com.
Bo Jacobsson, Department of Obstetrics and Gynecology, Sahlgrenska University Hospital, Gothenburg, Sweden; Department of Obstetrics and Gynecology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Rebecca Clifton, The Biostatistics Center, George Washington University, Rockville, MD.
Melissa Egbert, Natera Inc, San Carlos, CA.
Fergal Malone, Department of Obstetrics and Gynecology, Rotunda Hospital, Royal College of Surgeons in Ireland, Dublin, Ireland.
Ronald J. Wapner, Department of Obstetrics and Gynecology, Columbia University Irving Medical Center, New York, NY.
Ashley S. Roman, Department of Obstetrics and Gynecology, New York University Langone, New York, NY.
Asma Khalil, Department of Obstetrics and Gynaecology, St George's Hospital, University of London, London, United Kingdom.
Revital Faro, Department of Obstetrics and Gynecology, Saint Peter's University Hospital, New Brunswick, NJ.
Rajeevi Madankumar, Department of Obstetrics and Gynecology, Long Island Jewish Medical Center, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, New Hyde Park, NY.
Lance Edwards, Suffolk Obstetrics & Gynecology, Port Jefferson, NY.
Noel Strong, Department of Obstetrics and Gynecology, Icahn School of Medicine at Mount Sinai, New York, NY.
Sina Haeri, Austin Maternal-Fetal Medicine, Austin, TX.
Robert Silver, Department of Obstetrics and Gynecology, University of Utah, Salt Lake City, UT.
Nidhi Vohra, Department of Obstetrics and Gynecology, North Shore University Hospital, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Manhasset, NY.
Jon Hyett, Department of Obstetrics and Gynecology, Royal Prince Alfred Hospital, University of Sydney, Camperdown, New South Wales, Australia.
Zachary Demko, Natera Inc, San Carlos, CA.
Kimberly Martin, Natera Inc, San Carlos, CA.
Matthew Rabinowitz, Natera Inc, San Carlos, CA.
Karen Flood, Department of Obstetrics and Gynecology, Rotunda Hospital, Royal College of Surgeons in Ireland, Dublin, Ireland.
Ylva Carlsson, Department of Obstetrics and Gynecology, Sahlgrenska University Hospital, Gothenburg, Sweden.
Georgios Doulaveris, Department of Obstetrics and Gynecology and Women's Health, Montefiore Medical Center, Albert Einstein College of Medicine, New York, NY.
Sean Daly, Department of Obstetrics and Gynecology, Rotunda Hospital, Royal College of Surgeons in Ireland, Dublin, Ireland.
Maria Hallingström, Department of Obstetrics and Gynecology, Sahlgrenska University Hospital, Gothenburg, Sweden.
Cora MacPherson, The Biostatistics Center, George Washington University, Rockville, MD.
Charlly Kao, Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.
Hakon Hakonarson, Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.
Mary E. Norton, Department of Obstetrics, Gynecology and Reproductive Sciences, University of California, San Francisco, San Francisco, CA.

Document Type

Journal Article

Publication Date

1-13-2022

Journal

American journal of obstetrics and gynecology

DOI

10.1016/j.ajog.2022.01.002

Keywords

22q11.2 deletion syndrome; DiGeorge syndrome; cell-free DNA (cfDNA); prenatal screening

Abstract

BACKGROUND: Historically, prenatal screening has focused primarily on the detection of fetal aneuploidies. Cell-free DNA now enables noninvasive screening for subchromosomal copy number variants, including 22q11.2 deletion syndrome (or DiGeorge syndrome), which is the most common microdeletion and a leading cause of congenital heart defects and neurodevelopmental delay. Although smaller studies have demonstrated the feasibility of screening for 22q11.2 deletion syndrome, large cohort studies with confirmatory postnatal testing to assess test performance have not been reported. OBJECTIVE: This study aimed to assess the performance of single-nucleotide polymorphism-based, prenatal cell-free DNA screening for detection of 22q11.2 deletion syndrome. STUDY DESIGN: Patients who underwent single-nucleotide polymorphism-based prenatal cell-free DNA screening for 22q11.2 deletion syndrome were prospectively enrolled at 21 centers in 6 countries. Prenatal or newborn DNA samples were requested in all cases for genetic confirmation using chromosomal microarrays. The primary outcome was sensitivity, specificity, positive predictive value, and negative predictive value of cell-free DNA screening for the detection of all deletions, including the classical deletion and nested deletions that are ≥500 kb, in the 22q11.2 low-copy repeat A-D region. Secondary outcomes included the prevalence of 22q11.2 deletion syndrome and performance of an updated cell-free DNA algorithm that was evaluated with blinding to the pregnancy outcome. RESULTS: Of the 20,887 women enrolled, a genetic outcome was available for 18,289 (87.6%). A total of 12 22q11.2 deletion syndrome cases were confirmed in the cohort, including 5 (41.7%) nested deletions, yielding a prevalence of 1 in 1524. In the total cohort, cell-free DNA screening identified 17,976 (98.3%) cases as low risk for 22q11.2 deletion syndrome and 38 (0.2%) cases as high risk; 275 (1.5%) cases were nonreportable. Overall, 9 of 12 cases of 22q11.2 were detected, yielding a sensitivity of 75.0% (95% confidence interval, 42.8-94.5); specificity of 99.84% (95% confidence interval, 99.77-99.89); positive predictive value of 23.7% (95% confidence interval, 11.44-40.24), and negative predictive value of 99.98% (95% confidence interval, 99.95-100). None of the cases with a nonreportable result was diagnosed with 22q11.2 deletion syndrome. The updated algorithm detected 10 of 12 cases (83.3%; 95% confidence interval, 51.6-97.9) with a lower false positive rate (0.05% vs 0.16%; P<.001) and a positive predictive value of 52.6% (10/19; 95% confidence interval, 28.9-75.6). CONCLUSION: Noninvasive cell-free DNA prenatal screening for 22q11.2 deletion syndrome can detect most affected cases, including smaller nested deletions, with a low false positive rate.

Department

Epidemiology

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