Bioethics for Neonatal Cardiac Care
BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.
Madrigal, Vanessa N.; Feltman, Dalia M.; Leuthner, Steven R.; Kirsch, Roxanne; Hamilton, Rekha; Dokken, Deborah; Needle, Jennifer; Boss, Renee; Lelkes, Efrat; Carter, Brian; Macias, Eduardo; and Bhombal, Shazia, "Bioethics for Neonatal Cardiac Care" (2022). GW Authored Works. Paper 2008.