Bioethics for Neonatal Cardiac Care

Authors

• Vanessa N. Madrigal, Department of Pediatrics, Division of Critical Care Medicine and Pediatric Ethics Program, Children's National Hospital, George Washington University, Washington, District of Columbia.
• Dalia M. Feltman, NorthShore University HealthSystem Evanston Hospital, University of Chicago, Pritzker School of Medicine, Chicago, Illinois.
• Steven R. Leuthner, Departments of Pediatrics and Bioethics, Division of Neonatology, Children's Wisconsin, Medical College of Wisconsin, Milwaukee, Wisconsin.
• Roxanne Kirsch, Department of Critical Care, Division Cardiac Critical Care Medicine; Department of Bioethics, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.
• Rekha Hamilton, Mednax Inc. Cook Children's Medical Center, Fort Worth, Texas.
• Deborah Dokken, Family Leader and Staff Member, Institute for Patient and Family-Centered Care, Bethesda, Maryland.
• Jennifer Needle, Department of Pediatrics and the Center for Bioethics, University of Minnesota, Minneapolis, Minnesota.
• Renee Boss, Department of Pediatrics, Johns Hopkins School of Medicine and Berman Institute of Bioethics, Baltimore, Maryland.
• Efrat Lelkes, Department of Pediatrics, Divisions of Critical Care Medicine and Palliative Medicine, Bioethics, University of California San Francisco, San Francisco, California.
• Brian Carter, Departments of Humanities and Pediatrics, Division of Neonatology and Bioethics Center, Children's Mercy Hospital, University of Missouri-Kansas City School of Medicine, Kansas City, Missouri.
• Eduardo Macias, Department of Pediatrics, Division of Pediatric Cardiology. University Hospital, University of Texas, San Antonio, Texas.
• Shazia Bhombal, Department of Pediatrics, Lucile Packard Children's Hospital. Stanford, Palo Alto, California.

Document Type

Journal Article

Publication Date

11-1-2022

Journal

Pediatrics

Volume

150

Issue

Suppl 2

DOI

10.1542/peds.2022-056415N

Abstract

BACKGROUND: Clinicians caring for neonates with congenital heart disease encounter challenges with ethical implications in daily practice and must have some basic fluency in ethical principles and practical applications. METHODS: Good ethical practice begins with a thorough understanding of the details and narrative of each individual case, examination via classic principles of bioethics, and further framing of that translation into practice. RESULTS: We explore some of these issues and expand awareness through the lens of a case presentation beginning with fetal considerations through end-of-life discussions. CONCLUSIONS: We include specific sections that bring attention to shared decision-making, research ethics, and outcomes reporting. We review empirical evidence and highlight recommendations.

APA Citation

Madrigal, Vanessa N.; Feltman, Dalia M.; Leuthner, Steven R.; Kirsch, Roxanne; Hamilton, Rekha; Dokken, Deborah; Needle, Jennifer; Boss, Renee; Lelkes, Efrat; Carter, Brian; Macias, Eduardo; and Bhombal, Shazia, "Bioethics for Neonatal Cardiac Care" (2022). GW Authored Works. Paper 2008.
https://hsrc.himmelfarb.gwu.edu/gwhpubs/2008

Department

Pediatrics