Journal of Pediatric Oncology Nursing
Volume 30, Issue 3
Qualitative methods can be particularly useful approaches to use with individuals who are experiencing a rare disease and thus who comprise a small sample (such as children with cancer) and are at points in care that few experience (such as end of life). This data-based methods article describes how findings from a qualitative study were used to guide and shape a pediatric oncology palliative care intervention. Qualitative data can lay a strong foundation for subsequent pilot intervention work by facilitating the development of an underlying study conceptualization, providing recruitment feasibility estimates, helping establish clinically meaningful inclusion criteria, establishing staff acceptability of a research intervention, and providing support for face validity of newly developed interventions. These benefits of preliminary qualitative research are described in the context of this study on legacy-making, which involves reports of children (7-12 years of age) living with advanced cancer and of their parent caregivers.
Creative Commons License
This work is licensed under a Creative Commons Attribution-Noncommercial 3.0 License
Akard, T.F., GIlmer, M.J., Friedman, D.L., Given, B., Hendricks-Ferguson, V.L., Hinds, P.S. (2013). From qualitative work to intervention development in pediatric oncology palliative care research. Journal of Pediatric Oncology Nursing, 30(3), 153-160.