The Gender-Diversity and Autism Questionnaire: A Community-Developed Clinical, Research, and Self-Advocacy Tool for Autistic Transgender and Gender-Diverse Young Adults
Autism in adulthood : challenges and management
adult; autism; autistic; gender diverse; nonbinary; transgender
BACKGROUND: Autistic transgender people face unique risks in society, including inequities in accessing needed care and related mental health disparities. Given the need for specific and culturally responsive accommodations/supports, the characterization of key experiences, challenges, needs, and resilience factors within this population is imperative. This study developed a structured self-report tool for autistic transgender young adults to communicate their experiences and needs in a report format attuned to common autistic thinking and communication styles. METHODS: This cross-nation project developed and refined the Gender-Diversity and Autism Questionnaire through an iterative community-based approach using Delphi panel methodology. This proof-of-principle project defined "expertise" broadly, employing a multi-input expert search approach to balance academic-, community-, and lived experience-based expertise. RESULTS: The expert collaborators ( = 24 respondents) completed a two-round Delphi study, which developed 85 mostly closed-ended items based on 90% consensus. Final item content falls within six topic areas: and The majority of retained items relate to tasks and experiences of everyday life or the impact of experienced or anticipated discrimination, bias, and violence. CONCLUSIONS: This study employed a multipronged multimodal search approach to maximize equity in representation of the expert measure development team. The resulting instrument, designed for clinical, research, and self-advocacy applications, has parallel Dutch and English versions and is available for immediate use. Future cross-cultural research with this instrument could help identify contextual risk and resilience factors to better understand and address inequities faced by this large intersectional population.
Strang, John F.; McClellan, Lucy S.; Raaijmakers, Daphne; Caplan, Reid; Klomp, Sascha E.; Reutter, Mindy; Lai, Meng-Chuan; Song, Minneh; Gratton, Finn V.; Dale, Laura K.; Schutte, Anouschka; de Vries, Annelou L.; Gardiner, Finn; Edwards-Leeper, Laura; Minnaard, Amélie Lune; Eleveld, Niki Lou; Corbin, Endever; Purkis, Yenn; Lawson, Wenn; Kim, Da-Young; van Wieringen, Isa M.; Rodríguez-Roldán, Victoria M.; Harris, Marvel C.; Wilks, Madeline F.; Abraham, Gee; Balleur-van Rijn, Anouk; Brown, Lydia X.; Forshaw, Alexandra; Wilks, Gary B.; Griffin, April Dawn; Graham, Elizabeth K.; and Krause, Sandy, "The Gender-Diversity and Autism Questionnaire: A Community-Developed Clinical, Research, and Self-Advocacy Tool for Autistic Transgender and Gender-Diverse Young Adults" (2023). GW Authored Works. Paper 2775.
Psychiatry and Behavioral Sciences