On the creation, utility and sustaining of rare diseases research networks: Lessons learned from the Urea Cycle Disorders Consortium, the Japanese Urea Cycle Disorders Consortium and the European Registry and Network for Intoxication Type Metabolic Diseases

Authors

Marshall Summar, George Washington University
Fumio Endo
Stefan Kolker

Document Type

Journal Article

Publication Date

9-2014

Journal

Molecular Genetics and Metabolism

Volume

Volume 113, Issue 1-2

Inclusive Pages

105-108

DOI

10.1016/j.ymgme.2014.09.002

Comments

This is an open access PubMed Central article. Click on link for full-text access.

APA Citation

Summar, M.L., Endo, F., Kolker, S. (2014). On the Creation, Utility and Sustaining of Rare Diseases Research Networks: Lessons learned from the Urea Cycle Disorders Consortium, the Japanese Urea Cycle Disorders Consortium and the European Registry and Network for Intoxication Type Metabolic Diseases. Molecular Genetics and Metabolism, 113(1-2), 105-108.

Peer Reviewed

1

Open Access

1